CLEFT2025

Taskforce

A series of Task Forces comprised of geographically diverse members to compile, evaluate and make recommendations on several aspects of cleft and craniofacial care was initiated prior to the 1997 8th International Congress on Cleft Palate and Related Craniofacial Anomalies by President S.T. Lee.

These Task Forces reported their findings to the Congress attendees and at least one resulted in a peer-reviewed journal publication. However there was no subsequent continuation or follow-up until the 12th Congress held in the United States of America in 2013. Five Task Forces [addressing palate repair in speaking individuals, holistic outcomes, speech services where speech therapists are absent, speech assessment and collaborative studies beyond Eurocleft] were organized prior to the Congress and presented their work both in-person at the Congress and subsequently published in The Cleft Palate-Craniofacial Journal and on the Confederation’s website (https://www.iccpca.org/publication.php) in order to share findings and stimulate discussion.

The organizing committee of the 13th Congress, held in India in 2017, continued some of the 2013 Task Forces, established new ones [Research, Clefts Without Caries, Infant Care, Prevention] and discontinued some for a total of five. Again each Task Force presented their work both in-person at the Congress and subsequently published in the Journal of Cleft Lip Palate and Craniofacial Anomalies (https://journals.lww.com/cpcs/toc/2017/04001).

The organizing committee of the 14th Congress continued the Task Force “tradition” with continuation of some [Speech, Cleft Without Caries] and reconfiguration of others [Global Cleft Team Registry, Epidemiology-Aetiology-Prevention, Patient Centered Outcomes]. It is anticipated that the final reports of the CLEFT 2022 Task Forces will become available either on the Web and/or in a publication.

The 15th Congress continues the Task Force “tradition”with Cleft Registries, Clefts without Caries, Epidemiology-Aetiology-Prevention, Holistic Outcomes of Cleft Care, Neonatal cleft Care, and Telemedicine and Technology to Augment Remote Cleft Care.

Jeffrey Marsh, MD, USA
Jeffrey Marsh, MD, USA

1: The “Clefts Without Caries” Task Force is dedicated to developing, validating, and disseminating effective strategies to achieve caries-free childhood for children with cleft lip and/or palate. It focuses on promoting oral health programs and addressing barriers to improve oral health outcomes for those affected.

Chair : M S Muthu, MDS, PhD, MFDSRCPS (Glasg) Sri Ramachandra Dental College and Hospital, India

2: The “Epidemiology, Aetiology and Prevention of OFC” Task Force focuses on collecting and sharing data regarding environmental and genetic risk factors, standardising phenotyping (including cleft classification), and encouraging integration of aetiology and treatment to optimise collaborative research globally.

Chair : Peter Mossey, BDS, PhD, M Orth. University of Dundee
Azeez Butali DDS (Lagos), PhD (Dundee), FICD, FAMedS, FAAAS University of Iowa, USA


Chair : Peter Mossey, BDS, PhD, M Orth. University of Dundee


Chair : Azeez Butali DDS (Lagos), PhD (Dundee), FICD, FAMedS, FAAAS University of Iowa, USA

3: The “Global Task Force on Cleft Registries” Task Force primary goal is to develop and share effective models for cleft registries that can be adopted or adapted by organizations worldwide. By addressing key challenges such as health information privacy, we aim to establish frameworks that ensure secure, ethical, and impactful data collection and utilization.

Chair : Magnus Becker, MD, PhD Lund University, Sweden

4: The “Holistic Outcomes of Cleft Care" Task Force is exploring methods to facilitate the assessment of patient-centred outcomes in cleft care in ways that are appropriate to all cultures and resource levels.

Chair : Canice E. Crerand, PhD The Ohio State University College of Medicine, USA

5: The “Neonatal Cleft Care” Task Force will suggest guidelines for local/primary healthcare workers about feeding and care of neonates with clefts born in rural and/or healthcare resource limited environments lacking easy access to multidisciplinary cleft care teams.

Chair : Lu, Ting-Chen MD. Chang Gung Memorial Hospital, Taiwan

6: The “Telemedicine and Technology to Augment Remote Cleft Care” Task Force will review and share experiences with using tele-healthcare to deliver cleftcare services (such as: neonate feeding instruction, speech therapy, surgical follow-up) to affected individuals in rural areas without easy access to tertiary cleft centers.

Chair : Cristiano Tonello, MD, PhD University of São Paulo, Brazil